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Nedira Muratovic has given her name to the Nedira Foundation. She was the first child that Kurt Sköld tried to help to get an operation in Sweden.
In 1992 Nedira came to Sweden together with her mother, father and a brother. They were refugees from the wars in the Balkans and landed up in a refugee camp at Ystad.
Nedira suffered from Apert’s syndrome which, among other things, causes fingers and toes to grow together. As Nedira was a refugee she could not get any help in Sweden – refugees only get emergency treatment.
Kurt Sköld and TV 4 Öresund therefore started a fund-raising collection to pay for an operation of Nedira’s hands. Simultaneously he helped the family to apply for a residence permit. However, before the operation materialized, Nedira and her family were granted residence permits for Sweden. So Nedira was entitled to medical treatment like everybody else. The 300 000 SEK that generous Swedes had donated for her operation were not needed any longer and with this money the Nedira Foundation was started with a view to assisting other children.
Nedira was nine years old when she had her first operation in January 1994. After five further surgical operations she had four fingers on each hand. The Swedish surgeons could not do much for her feet.
Apert’s syndrome also involves deformed shapes of the head for the patients. Nedira’s skull cannot be operated upon until she has grown up completely. Today Nedira is 22 and she has had her cranium operation in Gothenburg, performed by the well-known expert, associate professor Lauritzen. [updated February 1, 2006].
Nedirafonden, Salviagatan 12, 271 38 Ystad tel 0411-555326 0706-555326